PatientsLikeMe is a patient network that improves lives and a real-time research platform that advances medicine. We’ve partnered up to bring you a place to learn more about living with and treating life-changing conditions, to connect with others sharing similar experiences, and to track progress over time.
Science Care strives every day to honor their donors by insisting upon the highest standards of excellence in our work. Founded in 2000, they are the first whole body donation program in the country to earn accreditation by the American Association of Tissue Banks, a benchmark of excellence. Science Care’s whole body donation program links donors with those in the medical community who devote their time to developing new, innovative techniques, devices and treatments to advance and improve the quality of healthcare.
Led by Dr. Michael Benatar and Joanne Wuu, the ALS Research Collaboration (ARC) at the University of Miami represents a coordinated effort to understand the reasons why we lack effective therapies for patients with ALS, and to advance scientific progress towards a meaningful treatment for this devastating disorder. It is our mission to overcome these challenges and to help fill gaps in our knowledge by studying genetic and environmental risk factors for disease, illuminating the natural history of disease specifically as it pertains to different genetic causes of disease, probing the relationship between genotype and phenotype, aiding in the development of potential biomarkers and utilizing these to study pre-symptomatic disease, and evaluating new therapies through clinical trials.
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The Spastic Paraplegia Foundation, Inc. (SPF) is the only organization in the Americas dedicated to finding a cure for Hereditary Spastic Paraplegia (HSP) and Primary Lateral Sclerosis (PLS). The SPF is a not-for-profit organization.
The American Foundation for Suicide Prevention is the leader in the fight against suicide. We fund research, offer educational programs, advocate for public policy, and support those affected by suicide.
Founded in April 1988, Louisiana Organ Procurement Agency (LOPA) is the federally designated, not-for-profit organ and tissue recovery agency for the state of Louisiana. LOPA also manages the Louisiana Donor Registry, a database of individuals who have expressed their decision to become an organ, tissue, and eye donors.
Legacy Donor Services Foundation is an American Association of Tissue Banks (AATB) accredited recovery service responsible for the recovery and care of tissue donations as well as providing educational resources for would-be donors and their families.
The mission of the National Institute of Mental Health is to transform the understanding and treatment of mental illnesses through basic and clinical research, paving the way for prevention, recovery, and cure.
Since 2013, the NIH NeuroBioBank has catalyzed scientific discovery through the centralization of resources aimed at the collection and distribution of human post-mortem brain tissue.
The National Institute of Neurological Disorders and Stroke (NINDS) conducts and supports research on brain and nervous system disorders. Created by the U.S. Congress in 1950, NINDS is one of the more than two dozen research institutes and centers that comprise the National Institutes of Health (NIH). The NIH, located in Bethesda, Maryland, is an agency of the Public Health Service within the U.S. Department of Health and Human Services. NINDS has occupied a central position in the world of neuroscience for 50 years.
The National Institute of Child Health and Human Development NICHD was established in 1962 to study the “complex process of human development from conception to old age.” In pursuit of its broad mission, the NICHD conducts and supports laboratory research, clinical trials, and epidemiological studies that explore health processes; examines the impact of disabilities, diseases, and variations on the lives of individuals; and sponsors training programs for scientists, health care providers, and researchers to ensure that NICHD research can continue.
Correlations between genotype and tissue-specific gene expression levels will help identify regions of the genome that influence whether and how much a gene is expressed. National Institutes of Health (NIH) Genotype-Tissue Expression (GTEx) will help researchers to understand inherited susceptibility to disease and will be a resource database and tissue bank for many studies in the future.
Anatomy Gifts Registry (AGR) provides an alternative to traditional final arrangement options, including nearly free cremation services. By donating your body to science, individuals have a real and lasting way to support medical research advancements that impact the lives of future generations for decades to come. Through the benefits of whole body donation, medical communities are able to continue to discover cures and therapies for many diseases and conditions currently afflicting patients across the world.